Friday, May 4, 2012

NY Congressman Takes Clinical Trial Reporting BULL, By The Horns

Congressman Tom Reed of New York State has introduced a Bill to require that the results of ALL, not just the ones that make a drug or device look good, but ALL clinical trial results, positive and negative, be reported. And it comes fully loaded with nice, sharp, teeth. If Government Funded research gets tanked, the Government Funding gets Refunded to the Treasury and the Research Tanker gets their non-disclosing/therapeutic privilege grubbing fingers shut Out of the Treasury for Future Grant Grubbings.

Here's Congressman Reed's press release:
Congressman Reed Introduces Bill To Strengthen Cancer Research Reporting Requirements 

Goal of legislation is greater sharing of trial results in search for cure
Congressman Tom Reed has introduced legislation in the U.S. House of Representatives which strengthens the enforcement mechanisms of the requirement to publicly report results of cancer trials and research conducted with federal grant money.  The goal of the legislation is greater sharing of cancer research results in the search for a cure to cancer.
“The more information available to all researchers, the greater the chance that we will someday find a cure for this horrible disease,” Reed said. “Public reporting of both positive and negative results will help other research be more effective and less duplicative. Enforcing the reporting requirement will not only lead to more available cancer research data, but also help every taxpayer dollar spent on research go further toward finding a cure.”     
“We are so excited and thrilled that our Congressman Tom Reed is introducing legislation which is the result of input received at the CANCER MISSION 2020 Congressional District Cancer Summits held last summer,” said Gary Mervis, Chairman & Founder of Camp Good Days and Special Times/CANCER MISSION 2020.  “This legislation is helping us to take a first step forward in our efforts to end cancer by the end of the decade.”
Current law requires that the results of cancer research conducted with federal money be publicly reported. However, the enforcement mechanism is very weak and as a result not all of the cancer research conducted is reported. Reed’s bill will require that any unreported research be penalized by forcing full repayment of the research grant to the Treasury.  In addition, the recipient of the grant will be ineligible for future grants.

So call your own Congress folks and tell them that you expect to see Their names appear as Supporters of Congressman Reed's Proposal.
We're currently Paying for Medical Research which is being Hidden when the product bombs and consumers get hurt or dead from it. And under this Status Quo, the scoundrels are allowed to keep Returning to the public trough to Continue their Treasury excavations.
See also:
Try these 6 posts too:
And for one More look at how Killer Drugs make their way through the FDA:

For More on Congressman Reed's Bill, Thank You Pharmalot for:
A Bill To Require Clinical Trial Disclosures
"Last month, a pair of academics from the University of Minnesota School of Public Health examined 2,385 completed pediatric studies registered with and found that only 29 percent were ever published." ..... 

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